Riley's Diagnosis

Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)

Thursday, September 21, 2006

A Few More Details...

The pediatric specialist told us that Riley's case of craniosynostosis is mild, but he IS going to need surgery to "un-fuse" the two plates that are fused together. Most likely, Riley's head will go back to it's normal shape after the surgical procedure. Obviously there are certain risks involved as the surgery will take place very close to his brain. Thankfully there is no pressure or damage to the brain that we know of. Riley will receive treatment at UCLA's medical center, in Los Angeles. We have our first consultation in L.A. on September 19th, where a team of doctors will assess Riley's situation. We should find out more details about the surgery then.

Please say a prayer for our sweet baby boy and for our family as we trust in the Lord that we'll overcome this obstacle and become a tighter, more united family because of it!

Thanks.
Lauren Faiai

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