Riley's Diagnosis
Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)
Friday, September 29, 2006
Riley Update 9.29.06
The Plastic Surgeon's office called while Steve was home this morning. Riley's surgery is set for Wednesday, January 3rd, 2007. We will go up 2 days earlier for a pre-op visit, where we will be able to take a tour of the place, meet with the anesthesiologist, and find a place to stay for the 4 day's we'll be in LA. We'll find out in a couple of days when and where we'll go to give blood for Riley. More details, and thoughts to follow. For now, here's a picture of Riley and also a REALLY cute picture of my friend, Tara's baby girl, Emersen!
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7 comments:
What type of Cranial repair is he having done?
Hi Cindy! If you're reading this, thanks for your comment and interest in my son! Can I have your email address? I've been looking for your email address but can't find it anywhere on your blog. Hopefully you see this comment on my page!!
Thanks! Lauren Faiai
Hi Lauren:
Sure:
ladybug_wi@yahoo.com
Hopefully things are going well.
Cindy
Hi, My name is Joel and our little 11 month-old baby girl (Annikah) is having surgery tomorrow (Oct. 2) for craniosynostosis.
Please know that Riley is in our prayers!
http://annikahtooley.blogspot.com
riley, riley, he's our man
if he can't do it, no one can!
we'll keep you in our prayers. til' then, stay strong kid.
BABY RILEY YOU'RE IN ALL OF OUR THOUGHTS AND PRAYERS...I LOVE YOU AND MADE THE GOOD LORD BE WITH YOU THROUGH IT ALL...GOD BLESS YOU BABY!!I LOVE YOU AND I PRAY THAT EVERYTHING GOES WELL FOR YOU...GOD BLESS YOU SWEET SOUL!!
I MADE A MISTAKE AND CAUGHT IT...I MEANT TO SAY MAY BUT I'M PRETTY SURE YOU FIGURED IT OUT...OOOPS!!
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