Riley's Diagnosis

Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)

Tuesday, October 24, 2006

Appointment Update

Riley is fine. The doctor told us that the bulging and discoloration of Riley's "soft spot" is just one of the effects of craniosynostosis. His brain is continuing to grow, and we're going to see changes as it does because of his condition. Thanks for your prayers. God heard. And then... He answered.
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1 comment:

INSANITY said...

Hi Lauren:
Not sure if you have been there yet or not but there is a good message board for Cranio.
www.cappskids.org

It's VERY helpful;

8:37 PM

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