Last night I dreamed that Riley had his surgery. I dreamed that I walked in the operating room after the surgery and saw his head all bandaged up, his eyes were all black and blue, his face was swollen, and there was lots of blood...everywhere. I was crying and crying and asked the doctor if they could clean him up a little bit more before he woke up. In my dream, I remember REALLY having a hard time figuring out a way to tell Cameron about what was happening to his baby brother, RIley and why he looked the way he did.
I don't want to tell Cameron that Riley has an "Owie", or tell him that the "doctor" had to fix Riley, because Cameron is already deathly afraid of the doctor's office...and he has to make frequent trips to the Emergency Room (see post titled "I Bonky My Head on The Door.") So if you have any good ideas about how I can explain CRANIOSYNOSTOSIS to my 2 year old, clue me in!
Steve woke me up because he heard me crying in my sleep. I was really worried this morning about this whole situation consuming me too much. But now that I think about it, I'm actually kind of excited about the fact that I was able to sleep heavily enough to even HAVE a dream!
Sweet!! I'm going back to bed!
Riley's Diagnosis
Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)
Wednesday, October 04, 2006
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5 comments:
3 months is a long time for a 2 yr. old to anticipate something, maybe you could wait until the week before. Sorry about your dream, does not sound like fun. It makes sense though after looking at pictures of other children going through it. That little girl that just had surgery looks GREAT and may even go home today. I was reading their post thinking the same God that is with them giving them miracles will be with Riley healing, touching, protecting and giving Riley his own miracles too. I know you can't compare kids, completely different stories but one thing for sure same God.
Lauren - have you thought about turning that "fear of doctors" into a good thing? Maybe if you explain to Cameron that the doctors are helping his little brother and what a good thing it is, it could relieve some of that fear and he could begin to trust them. Another idea is to speak with a patient liaison at the hospital (any Children's Hospital) about how to explain this to a 2 year old. Even though you're experiencing this for the first time, this is their job and deal with it on a regular basis.(just a thought). If you want to speak with someone at the San Diego Children's Hospital, let me know. Anyway, love you guys. Tell Steve I'm still waiting for our BBQ. You're in our prayers. Lots of Love, Aunt Sue!! :)
HI lauren:
I'm just checking in to see if you are ok. I have tried to email you, but haven't heard anything.
About telling your 2yr old.....My 3.5 yr olds didn't even get it. We just told them that the little guys had owies on their heads and that need to be fixed and that they need to go to the hospital to get it fixed.
How far are you from the hospital? HAve you looked into staying at a Ronald McDonal house? Most hospitals have one. We stayed in one and it was wonderful. We live 2 hours from our Children's hospital. Most have a waiting list so I would check now - if you need it.
Hang in there.
i know he's going to be just fine! as long as he has god, his mommy, his daddy, his older brother, his family and friends behind him, then it's all going to be alrgiht! we're here for ya ri!
His sis, i am sorry it took long for me to reply, but you know how it is when there are alot of people standing in line for a turn to check mail. Well, i first thank you as a young mother for having so much faith and for believing in our lord. it breaks my heart everytime i read about riley,but that is just me, a very sensitive human being.maybe i should share my experience with you about my angel foga who was taken from us.your situation is different from mine but i as a mother with faith want to share it with you, and hopefully it will help you out a little, and your dream is not to be compared to mine either,about 13 years ago, i was to give birth to a baby girl, but instead i gave birth to a stillborn.when i was 4 mos.pregnant,i had a dream that i gave birth to a beautiful baby girl who looked just like an angel, he had pinkish cheeks and a perfect face like no other baby i have ever had or seen before.the thing is i dont remember going into labor that night, but the nurses wearing all white brought the baby out in a white bassinet and everything on this bassinet was all white including this tall man dressed in a white robe whose face i could not see, i could see the robe and his white gloves but there was no face, and he was smiling down at me and my daughter. i woke up that morning with a beautiful feeling and lima,aso we still young but i shared my dream with them, and their dad and the joy i had in my heart was so wonderful.i was told at my last appointment that i will be scheduled to induce labor the day after, and that i should report to the hospital at 7:00am. the very next morning i woke and got the girls ready for school, dropped them off and i told them about the baby coming that day and they should come see her after school. they were so excited, and it made their morning.well, the night before i had a dream also that my house was full of people sitting around in a circle all dressed in black, and there was this same tall no face man dressed in black robe standing in the middle of it all, and not thinking of anything at all, i went to the hospital, and after i was all set up, the doctor comes in to check on the baby, and could not find a heartbeat in my stomach,after all i went through for all these months,i come to hear this, and i kept telling them to please check again and again, well at that time my tears were also rolling down my cheeks like pouring water, see, lauren, like you said, he giveth and he also taketh away, and til now i live that moment everyday and tears roll down my cheeks, my that never stopped me from believing that god had his own reason for taking her away from me, and i am happy that i have an angel looking over me, and a part of me is (my child)is with the lord,so dont feel sad at all or have any doubts about anything, at least you get to see your angel all the times, you get to hold him and sing to him all the times, but at the same time enjoy life, and take it one day at a time, just to let you know that when i hold riley, i always whisper in his ear that he is his parents angel from god. my faith was tested, and i know that my life as a christian hasnt always been perfect, but i pray about it and i never lost my faith in him, some people when things happen, they question the work of our God. not knowing that he giveth and taketh away. and he has his reasons that we will never know. well, sis, i love you and i know that everything will be alright, we as a family will pray too. sani,lauren,cameron,you guys are blessed to have an angel, i am blessed i have an angel with the lord.believe and trust in him and he will not let you alone.he is right next to us wherever we go and what road we choose, he will be there. i love having a family that believes in God, keep praying and praying, i am a stong believer of God too and he helped me too. my story is only to be shared with you for comfort and to know that you have someone that is with you all the way and understands everything you are going through. read your BIBLE whenever you have doubts, and then pray on it. people probably think of me as a poor person, but to me i am rich,because i have a lot of love from God that i can share with my family, and to help them when i can.i am rich with love to share with all of you, and GOD stored that in my heart. love you guys, and see you all soon.(tomorrow)
PEACE OUT !!!!!!!!!
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