Riley's Diagnosis

Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)

Sunday, January 07, 2007

Post Op Update 1/7/07 9:05AM

Nothing but PROGRESS is the update today!!
As you'll notice in the pictures below, Riley opened his left eye today!! He has ENERGY and is eating great!! We had the "OK" to leave today, until...

102 degree fever. Yep. We're SOOO close!! We're not concerned. He really looks great. And is acting more healthy than ever! so...they are doing some testing on his blood and will let us know later on today when and if we can leave. My guess would be tomorrow.

Here are some pictures from this bright morning in HOLLYWOOD!


RILEY - THOSE ARE SOME SWOLLEN LEGS, BUDDY.



A TEAR, AND AN OPEN EYE! PROGRESS MADE!





FIRST SMILE IN DAYS!!




We're "Going to Hollywood!!!" Just kidding. We're already here!

PICTURE FROM OUR ROOM IN THE HOSPITAL

Keep praying, thanks for checkin' in!

6 comments:

Anonymous said...

What awesome news, Lauren!! He is such a little angel. That smile is worth a thousand words. We love you!
Aunt Nita & Family

Anonymous said...

Fabulous!!! He looks great! We're going to pray you out of there!! :)
--shannon

Kara said...

Yeah! We are so excited to see his progress! Thanks for answering the girls they were very excited to hear from you. We will see you soon!

Anonymous said...

Praise the Lord for Riley's precious smile! He does look so much better! I'm so glad to hear that he can go home real soon. Still praying for Riley's temp to come down, so you can take your sweet baby boy home!

With love,
The Lacangan's

Anonymous said...

So glad to hear that Riley finally opened his left eye and can see you guys! Just to see that smile on his face warmed my heart to no end. I pray that you can go home soon and that the Lord will quickly finish healing his body and restore him to whole. So glad that he has made so much progress so quickly.
love, Jane and Richard

Anonymous said...

Lauren,
I'm bummed, couldn't view the video. that's wonderful news though! I'm so happy for you guys, getting close to comming home.
your pictures are priceless. What an angel baby!
Lots of Love from the Leggitt's.