Riley's Diagnosis

Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)

Thursday, July 31, 2008

Praying for Max - Surgery: 8/4/08 UPDATE 3!

I want to make a habit of using Riley's blog to highlight the stories of families who have contacted me about their children and upcoming craniosynostosis surgeries. I am so excited about this opportunity, and the encouragement that it might bring to the many families who have been encouraged by Riley's story!

This week I got an email from "Myra", from Miami FL, who shared a really sweet story about her son, Isaac Maxim "Max".


Myra and her husband adopted Max from Russia in December of 2007. After a number of doctor's visits, Max was diagnosed with craniosynostosis. He will have surgery on Monday, August 4th, 2008 to separate two sutures (Sagittal and Metopic) that are currently fused together. Max is 18 months old.



Please join me in praying for the Sierra family and specifically for Max.



Here are a few ways we can start praying. I will update as I receive updates from the family!

1. Pray for sweet Max's body today and this weekend. That he'd be healthy and strong leading up to his surgery date, this coming Monday, August 4th.

2. Pray for guidance and incredible wisdom for the doctors and hospital staff.

3. Pray for the Sierra family. That God would overwhelm them with peace and an outpouring of love and support from their extended family, and from others around the world who are praying!

UPDATE #1!

Myra's mother in law left a message on my voicemail today to let me know Max's surgery is over and was successful! They are in the waiting room right now, waiting to be reunited with Max! Thanks Sierra family, for the updates, and thanks to Riley's friends for praying! Continue to do so, throughout Max's recovery process in the next few days! Keep checking this post for updates!

UPDATE #3
I was able to speak to Esther, Max's grandma, today! My heart is filled with joy every single time I hear a report from this family, and today was no different! Max is doing wonderful! His drainage tube was removed today, as well as the wrap around his head. He his very much aware, awake and even watching cartoons from his hospital bed! Swelling has been minimal, and he is slowly being weened off of his morphine! WOW! God has answered some BIG time prayers already! Please keep praying for Max's speedy recovery! Keep checking this post for updates!

UPDATE #4
Thanks so much for your prayers and support! Max is out of the hospital, and his surgery was a complete success! He recovered incredibly quickly and is ding great at home getting back into the swing of things!! Here are a couple before and after pics.

MAX - Before Surgery:



MAX- After Surgery:


Feel free to leave a comment with a note of encouragement to this awesome family!

11 comments:

Anonymous said...

Max and Family -
We are praying with and for you this week. God bless you.

The Pratt Family
Clarksville, TN

Kelly Moments said...

Prayers and Love for the Sierra family! What a gorgeous boy they have!!

Steve Faiai said...

Sierra's,

This is Riley's dad Steve and I just wanted to let you know that I'm praying for you guys. Please let us know if you need anything.

Blessings.

rileyjamesfaia said...

Hi,I'm Mayling Maxi's grandmother, it is a great opportunity to thanks all those good souls that are praying for my Maxi. The family will always remember this with great appreciation. Maxi deserves a good life with daddy and mommy that love him so much. He makes them the most happiest parents in the world, after all... he is the little boy of their dreams. To the Faiai family,thank you for the support you are giving to Myra and Isaac. God Bless you all.
Thank you again
Mayling

Anonymous said...

Thank You to Everyone....
This is Max's Mom. I just wanted to thank everyone for their prayers and kindness. The last few days have been very hectic and tonight as I held my Max to sleep we prayed and I thanked God for all his blessings and prayed for strength and a quick and speeding recovery. God Bless you all and Thank you Lauren and Steve for sharing your storying and helping us to get through this really scary moment in our life.
Good Night. I will keep you posted on Max's condition of the next few days.
Love
Myra, Isaac and Baby Max

Esther said...

Myra and Isaac send their love and many thanks for all your prayers! Today is only Day 3 and thanks to your prayers for Max and his doctors he has come a long way!

God bless you and your families.

Esther and Enrique
Max's Grandparents

Esther said...

Just wanted everyone to know that Baby Max is home with Mom and Dad! Thanks for all your prayers and blessings!

Esther

Kelly Moments said...

I'm glad everything turned out good and Max's is recovering and doing well! WHAT a beautiful boy!

prozac and heart defects in babies said...

If your baby suffered a birth defect and you took Prozac® during pregnancy, you should consider consulting a birth injury lawyer. Some antidepressants may increase the risk of birth defects in children whose mothers take the medication while pregnant. For more information, contact our Prozac® birth injury attorneys.

prozac and craniosynostosis said...

Prayers for you and Max.

Anonymous said...

top [url=http://www.001casino.com/]001[/url] hinder the latest [url=http://www.realcazinoz.com/]casino[/url] autonomous no deposit perk at the best [url=http://www.baywatchcasino.com/]loose hand-out casino
[/url].