Hey all!
Just wanted to let everyone know that Riley has an appointment with the dysmorphologist (pediatric geneticist) on Tuesday, October 16th @ 9:00am. At this appointment, Riley will have some blood testing done along with an extensive physical examination to determine if Riley's deformities are related to Pfeiffer Syndrome. We're praying that's not the case.
One more thing...
After some researching, we realized since Riley's condition is rare, his doctor visits and surgery may be financially covered through " SSA Disabilty for Children". We filled out all the necessary paperwork, so now we're just praying we get the green light for the funds. Pray about that if you think about it!
Thanks So Much!
Riley's Diagnosis
Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)
Tuesday, October 10, 2006
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5 comments:
THANX FOR KEEPIN US ALL UP ON THE 4-1-1 ABOUT BABY RILEY..ITS GOOD TO KNOW ABOUT WHATS GOING ON WITH HIM..THANX AGAIN FOR ALL THE INFO. ON EVERYTHING ABOUT BABY R.J.
cute! got to spend time with him today...finally...he was a good boy too =)
Precious,Angel,Special messenger of love sent to us from God.
I was just thumbing around blogs concerning health and similar issues. i stumbled on your blog and noticed your beautiful children. Blessings to you guys. you are very blessed.
You should get SSA! It is the least that our government can do; is honor our social service programs to someone really in need of them! Let me or Troy know if you need any help with the rigormoral of filing the papers, etc. Let us know if there is anything we can do...
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