Riley's Diagnosis

Riley James Faiai is my 2 year old son who was born with Craniosynostosis and probable Pfeiffer syndrome. When he was 5 months old, Riley had surgery to reconstruct his skull. This blog is the journal, story, and timeline that has helped me put Riley's Journey into words. Browse around the archives and feel free to contact me for more info or support! -Lauren (lfaiai@gmail.com)

Friday, May 02, 2008

Riley Update May 2, 2008


After a few months of transition and settling in, Riley is adjusting well as are the rest of our family here. I've connected with doctors and specialists here who are going to kind of take up where we left off in CA. Riley will be seen again by the First Start program, so that we can keep working on Riley's language skills. Riley is slowly but surely progressing in this area. He is saying new words every day, but he doesn't use them consistently. We're really trying to reinforce him to use the words he knows more often.

A few other things we're excited about are:

1. Riley has had ZERO ear infections since he received tubes in January. This really seemed to be a problem solver in that area. It has also greatly helped his hearing.

2. Riley's skull is shaping very nicely. A few months ago, we were concerned about a few REALLY large bumps in Riley's head. They have since then seemed to straighten themselves out, and I haven't been able to find any bumps lately. We were told that as his skull is still shaping around his brain we will notice changes in his head shape, so I won't be surprised if we find different or more bumps in his skull as he grows.

All in all Riley's future is looking bright. The boy LOVES life, and we LOVE it with him here!

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